Diagnosis

Thrombotic thrombocytopenic purpura

A rare microangiopathic hemolytic anemia classically characterized by fever, hemolytic anemia, thrombocytopenia, purpura, and thrombosis in the kidneys and CNS.

Also known as: Hemolytic uremic syndrome

Etiology

Cause [fuc][47u]

Pathophysiology [47u][1op][zcr][fuc]

  1. Lack of the enzyme ADAMTS13 activity --> no cleaving of the von Willebrand factor

  2. Excessive clotting --> consumption --> thrombocytopenia --> bleeding/petechiae

  3. Erythrocytes destroyed by partially occluded vessels --> hemolytic anemia

  4. Organ affection: usually present with thrombi in the microvasculature of:

    • The peripheral blood

    • The central nervous system

    • The kidneys --> Hemolytic Uremic Syndrome

    • The lungs (rare)

    • The heart (rare)

Complications [fuc]

Epidemiology

Incidence per 100.000 [vmb][3bz][1gw][47u][1op][ht1][zcr][fuc]

Epidemiology chart for Incidence

Symptoms & findings

Symptoms

Aphasia, Chills, Coma, Confusion, Dark urine, Diarrhea, Dyspnea, Fatigue, Fever, Hallucinations, Headache, Hemiplegia, Icterus, Malaise, Pallor, Paralysis, Paresis, Paresthesia, Petechia, Seizure, Tachycardia, Vertigo, Weakness

Clinical findings

Anemia, Bilirubinuria, Decreased Haptoglobin, Decreased MCV, Elevated Bilirubin, Elevated Creatinine, Elevated D-dimer, Elevated Fibrinogen, Elevated Lactic Dehydrogenase, Jaundice, Schistocytes, Stroke, Thrombocytopenia

Anamneses

None listed.

Localized findings

Pain
Radiates
CaputAbdomen
Onset
Gradual (days)
Pattern
Constant
Severity
Mild (1-3)Moderate (4-7)
Rash
Radiates
CaputCollumThoraxAbdomenGenitalArmBackLower body
Distribution
GeneralizedMultipleSymmetric
Lesion type
EcchymosesHematomaPetechiaPurpura
Color
Red

Approach

PLASMIC score (1 point per feature)  [fuc]

Score > 5 --> higher likelyhood of TTP

Treatment

  1. Plasma exchange: 1-1,5 times plasma volumes daily until normal platelet count [47u]

  2. Fresh frozen plasma infusion: 5–75 ml/kg daily (usually 40 mL/kg) [fuc]

  3. Medications that slow anti-ADAMTS13 antibodies formation: [zcr]

    • IV methylprednisolone (1 g/day for 3 days) or Prednisolone (1 mg/kg/day)

    • Rituximab 375 mg/m2

    • Caplacizumab

    • Mycophenolate mofetil

    • Cyclosporine

    • Cyclophosphamide

    • Cincristine

    • Bortezomib

    • Azathioprine (pregnant patients)

  4. Supportive medications once platelet count has improved:

    • Aspirin

    • Low‑molecular‑weight heparin

    • Packed red blood cells

  5. Surgery: Splenectomy (removes a major site of antibody production)

Differential diagnoses

Disseminated intravascular coagulation, Drug side effects, Hemolytic uremic syndrome, Immune thrombocytopenic purpura, Malignant hypertension, Preeclampsia, Scleroderma, Stroke, Systemic lupus erythematosus


References

[1] Stanley M, Killeen RB, Michalski JM. Thrombotic Thrombocytopenic Purpura. [Updated 2023 Apr 7]. In: StatPearls [Internet]. Treasure Island (FL): StatPearls Publishing; 2025 Jan-. Available from: https://www.ncbi.nlm.nih.gov/books/NBK430721/

[2] Thrombotic Thrombocytopenic Purpura. CHI Formulary Indication Review. Council of Health Insurance. November 2023. https://www.chi.gov.sa/Style%20Library/IDF_Branding/Indication/152%20-%20Thrombotic%20Thrombocytopenic%20Purpura%20(TTP)-New%20Indication.pdf

[3] Erkurta MA, Kayaa E, Berbera I, Koroglua M, Kuku I. Thrombocytopenia in Adults: Review Article. Journal of Hematology, Volume 1, Number 2-3, June 2012, pages 44-53.

[4] Nusrat S, Beg K, Khan O, Sinha A, George J. Hereditary Thrombotic Thrombocytopenic Purpura. Genes (Basel). 2023 Oct 18;14(10):1956.

[5] Miller DP, Kaye JA, Shea K, Ziyadeh N, Cali C, Black C, Walker AM. Incidence of thrombotic thrombocytopenic purpura/hemolytic uremic syndrome. Epidemiology. 2004 Mar;15(2):208-15.

[6] George JN, Vesely SK, Terrell DR. The Oklahoma Thrombotic Thrombocytopenic Purpura-Hemolytic Uremic Syndrome (TTP-HUS) Registry: a community perspective of patients with clinically diagnosed TTP-HUS. Semin Hematol. 2004 Jan;41(1):60-7.

[7] George JN. Clinical practice. Thrombotic thrombocytopenic purpura. N Engl J Med 2006;354:1927–35.

[8] Hussein MS, Al Baqir HA, Waznah AS, Alharbi KM et al. 2022. “The Epidemiology and Administration Outcomes of Thrombotic Thrombocytopenic Purpura (TTP): Review Article”. Saudi Medical Horizons Journal 2 (3):124-33.

[9] http://emedicine.medscape.com/article/206598 (2014-01-02); [Medscape]

[10] Cleveland Clinic. Thrombotic Thrombocytopenic Purpura. Published 2022. Accessed September 27, 2023. https://my.clevelandclinic.org/health/diseases/22380-thrombotic-thrombocytopenic-purpura

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